Friday, April 3, 2009

A Disabled God

Let me start off by saying I do not agree with many of the late Nancy Eiesland's views, however, I do think that the part that I've bolded and highlighted below bears consideration.

Nancy Eiesland Is Dead at 44; Wrote of The Disabled God

March 21, 2009

By the time the theologian and sociologist Nancy Eiesland was 13 years old, she had had 11 operations for the congenital bone defect in her hips and realized pain was her lot in life. So why did she say she hoped that when she went to heaven she would still be disabled?

Nancy Eiesland specialized in the theology of disability.

The reason, which seems clear enough to many disabled people, was that her identity and character were formed by the mental, physical and societal challenges of her disability. She felt that without her disability, she would “be absolutely unknown to myself and perhaps to God.”

By the time of her death at 44 on March 10, Ms. Eiesland had come to believe that God was in fact disabled, a view she articulated in her influential 1994 book, “The Disabled God: Toward a Liberatory Theology of Disability.” She pointed to the scene described in Luke 24:36-39 in which the risen Jesus invites his disciples to touch his wounds.

“In presenting his impaired body to his startled friends, the resurrected Jesus is revealed as the disabled God,” she wrote. God remains a God the disabled can identify with, she argued — he is not cured and made whole; his injury is part of him, neither a divine punishment nor an opportunity for healing. [emphasis mine]

Ms. Eiesland (pronounced EES-lund), who was an associate professor at the Candler School of Theology at Emory University in Atlanta, died not of her congenital bone condition, nor of the spinal scoliosis that necessitated still more surgery in 2002, but of a possibly genetic lung cancer, said her husband, Terry.

Ms. Eiesland’s insights added a religious angle to a new consciousness among the disabled that emerged in the 1960s in the fight for access to public facilities later guaranteed by the Americans with Disabilities Act of 1990. The movement progressed into cultural realms as disabled poets, writers and dramatists embraced disability as both cause and identity.

Pointing out that anyone can become disabled at any time, the disabled called those without disabilities “the temporarily able-bodied.” They ventured into humor, calling nondisabled people bowling pins because they were easy prey for wheelchairs.

Ms. Eiesland’s contribution was to articulate a coherent theology of disability. Deborah Beth Creamer, in her book “Disability and Christian Theology” (2009), called Ms. Eiesland’s work the “most powerful discussion of God to arise from disability studies.”

In an e-mail message, Rebecca S. Chopp, the president of Colgate University, who is known for her feminist theological interpretations, characterized Ms. Eiesland as “a, if not the, leader of disability studies and Christianity and disability studies in religion.”

In four books and scores of articles, Ms. Eiesland’s scholarship also included a much-cited book on the dynamics of churches in an Atlanta suburb. Groups like the World Council of Churches asked her to speak on disability.

For 10 years, she consulted with the United Nations, helping develop its Convention on the Rights and Dignity of Persons with Disabilities, which was enacted last year. The convention describes the disabled as “subjects” with rights, rather than “objects” of charity. It explicitly endorses spiritual rights for the disabled.

Nancy Lynn Arnold was born in Cando, N.D., and grew up on a farm nearby. Operations to remedy her birth defect began when she was a toddler. Her parents also took her to faith healers. She wrote that she was a poster child for the March of Dimes, a charity that some advocates for the disabled criticize for its appeals to pity.

After she was fitted with a full-leg brace at age 7, her father told her: “You’re going to need to get a job that keeps you off your feet. You’ll never be a checkout clerk.”

In high school, she won a national contest with an essay on the inaccessibility of rural courthouses in North Dakota. She organized a letter-writing campaign on the issue.

She enrolled at the University of North Dakota, where she campaigned for ramps into the library and accessible parking spots. She dropped out after her beloved older sister was killed in an automobile accident.

Nancy and her stricken family joined the Assemblies of God and moved to Springfield, Mo., where the church has its headquarters. She enrolled in Central Bible College, which trained ministers, and graduated as valedictorian in 1986. She became an Assemblies of God minister, but gradually drifted away from the denomination.

She became a student at Candler, where she studied theology under Ms. Chopp. Ms. Chopp remembered Ms. Eiesland’s complaining that for all Christianity’s professed concern for the poor and oppressed, the disabled were ignored.

“I looked at her and said, ‘That is your work,’ ” Ms. Chopp said.

After a stunned silence, Ms. Eiesland accepted the challenge as fodder for a master’s thesis, which evolved into “The Disabled God.” She earned her master’s degree in 1991 and her Ph.D. in 1995, both from Emory.

Ms. Eiesland is survived by her husband; their daughter, Marie; her parents, Dean and Carol Arnold; two brothers, Neal and Victor Arnold; and two sisters, Katherine Arnold and Jocelyn Gracza.

As she strove to define new religious symbols, Ms. Eiesland’s metaphors were startlingly incisive. She envisioned God puttering about in a “puff” wheelchair, the kind quadriplegics drive with their breath.

A version of this article appeared in print on March 22, 2009, on page A29 of the New York edition
Books By Ms Eiesland:

The Disabled God

A Particular Place: Urban Restructuring and Religious Ecology in a Southern Exurb

The Disabled God: Toward a Liberatory Theology of Disability

Human Disability and the Service of God


Anonymous said...

Hello Aspie,

I am writing in regards to your article on my sister, Dr. Nancy Eiesland. I was present at her side when she died and have tried in my own way to come to grips with the passing of another sibling. I have read many of the postings that have included Nancy's writings and eulogies to her and her contributions. She, her husband and their daughter were planning on attending the United Nation's unveiling of the new "inclusion laws" in Berlin in November 2008. They were then traveling to my home also here in Europe. Needless to say, she and her family were not able to make that trip and her suffering here on earth is finished. My siblings, I and my parents have watched and read many postings regarding Nancy that have repeated much that was not true and many times presented those who raised her and grew up with her in skewed light. I have read and stayed silent, thought and stayed silent, and now choose to address some of those inacuracies. Nancy was NEVER a poster child for March of Dimes. Even in her own writings she is careful not to lible herself by naming this organization. She was never sent to collect 'coins' from other children to help "prevent other damaged children like herself". My parents never took her to faith healers, even though she was prayed for continually, as divine healing is one of the tenants of our faith. Her lung cancer was not genetic, even though there has been a predisposition to cancer in our family. No medical test bears out that alligation. My father's comment "About needing a desk job" was a natural attempt by a parent to encourage a child when faced with limitations and pain. Taken out of context and used as it has been to showcase the insensitivity of those not suffering with "temporary disability" is a true miscarriage of compassion. My parents suffered and sacrificed immensely for Nancy to be able to live a life with as few limitations as possibile. Nancy did not quit attending UND in North Dakota because of Susanne's death, rather,as a minor she choose to move with her parents to Missouri when they did. She still lived at home at that time. My family did not join the Assemblies of God after my sister Susanne's death, rather had been members of this denomination for over 25 year's at that time. I am aware that you have no independant way of verifing these details, but using unverified view points can cause untold sorrow for those involved. Thank you for allowing me to clarify your posting. Blessings, Jocelyn Gracya

SavedAspie said...

Hi Nancy's Sister,

Thank you for your post. I notice that many of the points you make were neither addressed by my blog nor the original article I quoted. I don't mind: since you are working to correct inaccuracies about your sister's life, you probably have a stock blurb with which you do so. I certainly hope I have not contributed to your family's sorrow, but if I have be mindful that it was unintentional (I was simply quoting a news article). May God, the Father of our Lord Jesus Christ, Bless You and Yours.

Anonymous said...

Dear Saved Aspie,

Thank you for posting and responding to my message. It was kind of you and I am touched and appreciative of the blessing at the end. May the Lord allow His face to shine upon you and yours.

Jocelyn Gracza