Thursday, March 5, 2009

A Cure?

Today in Austism Bites, there I read a post called "Autism Opinions and Noses, Everybody Has One which discussed autism research and where the bulk of the money should be spent. Should we spend more on research to uncover the cause behind autism or spend the bulk on research to help people deal with the "hear and now."

Here is my comment to their post:

This is a tough one for me. Tough because I look at my life and what I've done for myself and I know that I like who I am. Yes, I process things differently from others, and no, some of the "social neurons" don't exist. But I've learned enough "social graces" to mimic what I wasn't born with, and have found ways to work around certain aspie traits that trip others up. Also, I have a wonderful spouse and kid and a rich scientific career. I doubt I'd have either were I like my NT sisters and brothers (all 7 of them) because I'm the only one who is doing well for myself. And I'm truly happy. So the thought of "curing" me scares me. The thought of not being "me" because society found away to prevent autism (to prevent "another generation lost to this disorder" as another commenter put it) scares me.

BUT... then I go to meetings for autistic/aspie adults and see those who cannot take care of themselves like I can. Or interact with the autistic child of my friend who can't speak and has twice endangered the lives of his parents.

Then I'm not so sure. Not sure what is the right answer, and not sure IF there's a right answer.


tiffrutherf said...
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SavedAspie said...

Hi tiffrutherf. Are you related to someone diagnosed with autism like the young man I mentioned in my post? Although Aspergers and Autism are often consider along the same spectrum, there are marked enough differences between the two that they are different diagnoses. This is where the crux of the conflict lies- so many of the "neurodiversity" indidviduals arguing for more inclusion and acceptance do not have to suffer through life in the same manner as their "more obviously autistic" brethren. So I see quite a bit of anger on their part about research for a cure. On the other hand, I work with autistic individuals who, if a "normal pill" existed, would take one without hesitation.

Though I certainly don't agree with your perspective, you are welcome to share your opinion on my blog anytime.

tiffrutherf said...
This comment has been removed by the author.